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Science Sunday -- PWS: From Bedside to Bench and Back to Bedside

Event Type: For All Ages
Age Group(s): Adults (18 +), Family (all ages), Teens (age 13 - 17)
Date: 4/22/2018
Start Time: 2:00 PM
End Time: 4:00 PM
Description:
 Dr. Lara Pullen, who has a son with Prader-Willi Syndrome (PWS), tells for the first time the story of how she identified a novel drug (Pitolisant) to treat this devastating genetic syndrome. She will describe the horrifying, yet intriguing, symptom of cataplexy and its dramatic impact on her son. This single, bizarre symptom led her to comb the medical literature to identify a drug treatment, launching her collaboration with the FDA and establishment of a foundation to bring the drug to more children with PWS, which has facilitated the successful treatment of a growing number of children.
Lara Pullen earned her PhD in immunology from Northwestern University's Feinberg School of Medicine and completed post-doctoral work at the University of Chicago. She is a freelance medical writer who has a longstanding interest in systems biology, particularly at the intersection of the immune, nervous, and endocrine systems, and is co-founder of the Chion Foundation.
This program is hosted and sponsored by the Friends of the Berwyn Library.

Location: Community Room
Contact: Friends of the Berwyn Library
Contact Number: 708-795-8000 x3096